CDH Blogs
Do you have a Congenital Diaphragmatic Hernia CDH blog? If you desire to continue raising awareness...another way is to place a link on our website. If you desire to do so, please email us...and we will place the link on our site!
email : contactinfo@globalcdh.org
email : contactinfo@globalcdh.org
Baylee Grace McCoy
http://bayleegrace.blogspot.com/
"They wheeled me into the NICU and I saw Adam and he was crying. I thought why is he crying. Then some man hugged me and my parents and Kim were there and they all were upset. I was in shock I think."
KINLEY SEEP MELCHER
http://kinleymelcher.blogspot.com/
"Our baby, Kinley, was diagnosed in March 2008 at 29 weeks gestation with Congenital Diaphragmatic Hernia (CDH)."
Sofia's Blog
http://www.sofiascdhstory.com/
"We created this blog to keep family and friends updated on Sofia's latest news, share our story with other CDH families, and to raise awareness for CDH."
Nayeli Blog
http://nayelinelson.blogspot.com/
Nayeli was diagnosed with severe Left Congential Diaphragmatic Hernia (LCDH) during her 18 week ultrasound, on June 4, 2008. We have created this blog to keep family and friends updated, and to raise overall awareness of CDH
Caleb's Blog
http://calebburtonsjourney.blogspot.com/
"The day before discharge, Dr. Kays came by to take a photo with Caleb and say his goodbyes. That was probably one of those moments I will never forget. How do you thank someone for saving your son's life? There are no words that can tell someone exactly how you feel..."
Baby Brian's Blog Baby Claire's Blog
http://babyclaire07.blogspot.com/
"I started this blog before Claire was born to keep our family and friends updated about her CDH. It was a great tool to have while we were up at the NICU because it kept me from having to make so many phone calls and allowed everyone to see pictures. Since then it has become an "online baby book" (I love going back and reading my old posts and remembering all of Claire's major milestones), has kept our out-of-state family in the loop, has raised awareness..." MORE
Ireland Rose Brady
www.lovingourirelandrose.
I am from Virginia, have lived all over, and currently reside in Utah. I am married with a son and am currently pregnant with my daughter, Ireland Rose. She is about to have the fight for her life with Congenital Diaphragmatic Hernia. I'm making this blog to sort of have a diary for friends and family. Hopefully, this will help them understand a little better
www.lovingourirelandrose.
I am from Virginia, have lived all over, and currently reside in Utah. I am married with a son and am currently pregnant with my daughter, Ireland Rose. She is about to have the fight for her life with Congenital Diaphragmatic Hernia. I'm making this blog to sort of have a diary for friends and family. Hopefully, this will help them understand a little better
Chelsea Sterling
It all began at our first trimester screening at 10 weeks gestation. The ultrasound revealed something unexpected. There was fluid behind the baby's neck known as Cystic Hygroma. The Perinatologist explained that this can sometimes be an indication of a genetic abnormality and suggested we get a CVS test. MOREJaxson's CDH Journey
http://www.cdhsurvivorjaxson.blogspot.com/
"Jaxson is a CDH survivor and this blog follows his story and our ongoing efforts to spread the word about CDH.
Jaxson was diagnosed with LCDH at our 20 week ultrasound. His stomach, intestines, spleen, apendix and left lobe of the liver had all herniated into his chest cavity. We were told his chances of survival were less than 50% and that he had an 80% chance of going on ECMO.
He was born at Hospital of the University of Pennsylvania and transported next door to CHOP on 5-19-08. MORE
He is our CDH rock star!
Ruby Hope's Blog
www.rubyhope.com
At 20 weeks, there was quite a surprise at our level II ultrasound /
anatomy scan of Ruby. She didn't carry any of the soft markers for Down's
syndrome, but she had a Congenital Diaphragmatic Hernia. We had never
even heard of that. But basically the doctor said that her chances of
survival were roughly 50/50 or less and that we should see a
specialist. An amniocentesis confirmed that she does not have Down's
or any other chromosomal abnormalities, meaning we could be as
aggressive with her treatment as we wanted. And this is where our
battle with CDH started.
In God's Sight : Life after CDH - Noah's Blog
"We have been married for 5 years & have a 2 year old son, Noah. At 31 weeks he was diagnosed with right-sided diaphragmatic hernia and that diagnosis led us to Gainesville. We were placed under the care of Dr. Kay's at Shands Gainesville." MORE
Ethan Glahn's Blog
"When Trish was about 7 months along an ultrasound found something was not quite right. A team of Medical Dr's and Specialists were assembled to review test results and diagnose the situation. It seems that little Ethan has a condition known as CDH." MORE
Graham's Blog
http://www.cdhmomma.blogspot.
Though I don't consider myself very interesting, I was given a pretty interesting kid who has a story I consider worth telling. I started this blog to get his story down.
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