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In the News
Over $2,900 Raised in Tough Economic Conditionsfor CDH
A New Charity's Dream - To Earn 4-Star Rating
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Over $2,900 Raised in Tough Economic Conditions for Congenital Diaphragmatic Hernia
Jaxson's Jog Raises $2,900 to Support
Nonprofit Organization Global CDH and its Programs
Original Press Release
June 01, 2009 – Pittsburgh, PA – Wondering what success is? Jaxson’s Jog (http://www.jaxsonsjog.com)
The inaugural Jaxson’s Jog 5K race was held on May 23, 2009 and welcomed runners and walkers of all levels and ages to the beautiful North Park Boat House in Allison Park, Pennsylvania on a USA Track & Field Sanctioned course. It was held in partnership with Global CDH and organized by Sarah Mayer, mother to Jaxson Isaac Mayer, born on May 19, 2008 with left-sided CDH. The race covered a 3.1 mile certified course timed and managed by Runners High timing service. Prizes were awarded to overall top finishers and runners in each age group. T-shirts and gift bags were provided to all participants.
Over 130 walkers and runners completed the course and raised over $2,900 to benefit Global CDH, an organization dedicated to supporting parents with medical and travel expenses related to CDH. Each cent raised will be utilized to subsidize the cost for travel, food, and medical expenses for the parents of babies with CDH. For more information, visit the information page located on the Global CDH website ( http://www.globalcdh.org).
Jaxson's Jog is just one of many events that Global CDH is a part of in efforts to raise awareness for CDH. “Our organization aims to provide positive programs which will benefit the CDH Community,” says Luis A. Ramirez, President and Trustee of Global CDH, regarding Global CDH Mission. Global CDH is a grassroots initiative incorporated in New Jersey on May 18, 2008. Their aim is to assist families that will experience the financial and psychological challenges associated with CDH before, during, and after birth. Global CDH's programs provide resources for hope while the infant is in utero and after delivery during the neonatal intensive care unit (NICU) stage, provide resources and support for the care and treatment of patients (after NICU), and provide shelter as needed to an infant’s family diagnosed with CDH during the NICU stage.
About Congenital Diaphragmatic Hernia
A congenital diaphragmatic hernia birth defect occurs in 1 in 2,000 live births in the United States and accounts for 8% of all major congenital anomalies. With the rate of live births in the United States at 4,115,590 in 2004, this translates to approximately 1,800 live births with the congenital diaphragmatic hernia birth defect.
In the developing fetus, the diaphragm – the muscle that separates the chest and abdominal cavities – fails to close, allowing the abdominal organs to migrate into the chest, compressing the heart and lungs. While surgery can correct the diaphragm shortly after birth, the underdeveloped lungs cannot deliver enough oxygen and a CDH newborn requires immediate high-tech respiratory support. Long term issues of CDH can include feeding problems, respiratory issues, and developmental delays.
The inaugural Jaxson’s Jog 5K race was held on May 23, 2009 and welcomed runners and walkers of all levels and ages to the beautiful North Park Boat House in Allison Park, Pennsylvania on a USA Track & Field Sanctioned course. It was held in partnership with Global CDH and organized by Sarah Mayer, mother to Jaxson Isaac Mayer, born on May 19, 2008 with left-sided CDH. The race covered a 3.1 mile certified course timed and managed by Runners High timing service. Prizes were awarded to overall top finishers and runners in each age group. T-shirts and gift bags were provided to all participants.
Over 130 walkers and runners completed the course and raised over $2,900 to benefit Global CDH, an organization dedicated to supporting parents with medical and travel expenses related to CDH. Each cent raised will be utilized to subsidize the cost for travel, food, and medical expenses for the parents of babies with CDH. For more information, visit the information page located on the Global CDH website ( http://www.globalcdh.org).
Jaxson's Jog is just one of many events that Global CDH is a part of in efforts to raise awareness for CDH. “Our organization aims to provide positive programs which will benefit the CDH Community,” says Luis A. Ramirez, President and Trustee of Global CDH, regarding Global CDH Mission. Global CDH is a grassroots initiative incorporated in New Jersey on May 18, 2008. Their aim is to assist families that will experience the financial and psychological challenges associated with CDH before, during, and after birth. Global CDH's programs provide resources for hope while the infant is in utero and after delivery during the neonatal intensive care unit (NICU) stage, provide resources and support for the care and treatment of patients (after NICU), and provide shelter as needed to an infant’s family diagnosed with CDH during the NICU stage.
About Congenital Diaphragmatic Hernia
A congenital diaphragmatic hernia birth defect occurs in 1 in 2,000 live births in the United States and accounts for 8% of all major congenital anomalies. With the rate of live births in the United States at 4,115,590 in 2004, this translates to approximately 1,800 live births with the congenital diaphragmatic hernia birth defect.
In the developing fetus, the diaphragm – the muscle that separates the chest and abdominal cavities – fails to close, allowing the abdominal organs to migrate into the chest, compressing the heart and lungs. While surgery can correct the diaphragm shortly after birth, the underdeveloped lungs cannot deliver enough oxygen and a CDH newborn requires immediate high-tech respiratory support. Long term issues of CDH can include feeding problems, respiratory issues, and developmental delays.
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Sarah Bentz Mayer of Infiniti Events
Infiniti Events is a full-service event firm based in Pittsburgh, PA. The firm assists clients with non-profit events, corporate events, outdoor concerts, weddings, and private events. To learn about Infiniti Events visit http://www.infinitieventsinc.com
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November 19, 2008 Earlier this month, I was a guest lecture at Seton Hall’s Nonprofit Sector Resource Institute’s Financial Management Certificate Program. Participants in the program include executive directors, fundraisers, financial managers, board members as well as individuals considering a career change from the for-profit to the nonprofit sector.
My presentation focused on how charity raters use financial information. The goal was not to transform the participants into Charity Navigator analysts, but rather to help them understand how donors – individuals, foundations and corporations – view their fiscal health. After the class, many of the participants indicated that they planned to return to their office to take another look at their finances from the viewpoint of a funder.
One of those was Luis Ramirez, the founder and president of the brand new charity Global CDH. He started the charity this past year after his daughter – beautiful Isabela – was born with Congenital Diaphragmatic Hernia. I admire his energy and his vision! Along with his full-time job and the responsibilities that come with being a new dad of a child with serious health issues, he’s made a major commitment to helping other families cope the diagnosis of CDH. While his charity is both too new and too small to meet our criteria for evaluation, Luis has his eye on the goal of someday becoming a financially efficient, 4-star charity.
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