CDH Stories

CDH Stories Directly from the Heart

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Congenital Diaphragmatic Hernia (CDH) is a life changing experience.  It involves the parents, family members, and others close to us.  Below are several resources to provide optimism in the midst of uncertainty.  

As such, support from family, friends and others can be a good resource as your child grows in utero, receives specialized treatment related to CDH and beyond. 

On this page, you will find information on the physical and emotional CDH support you may need. 

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Logan Charles Minch
by Erika Minch

It has taken me almost a year and a half to finally find the strength to write Logan’s story.  My husband and I were ecstatic to find out we were pregnant with our second child.  My first pregnancy was completely normal and uneventful.  We assumed the second pregnancy would be just as easy. (more)

by Michelle Greager 
This is the story of our Angel Baby, and how his short life had such a huge impact. . I hope everyone will be able to take a little something from this article." (more)

Ethan's CDH Journey
by Trisha Glahn
My beautiful son was hooked up to so many machines, oxygen, and had warming lights on him.  I felt disconnected from him and was worried that I would never get to know him. (more)

by Shanell Browand 
On September 20, 2007, Ayda Rose Browand was born at 4:42pm, weighing 7 lb. 11 oz. I couldn't hold her. They took her over to the bed and cleaned her up as they put her on oxygen. I looked around. My hospital room was full of stress. I had my husband, mother in law, mom, grandma, two Antepartum nurses, 2 OBGYNs, 2 NICU doctors, and 4 NICU nurses. It was so stressful! (more)
by Arly Genao 
Isabela was born at 1:01 am. I was only able to catch a glimpse of her as they rushed her to the other side of the room for cleaning, etc. I was filled with so many emotions as I waited for them to bring her to me to hold for the very first time.   I kept asking Luis what they were doing, and how she looked, and when they were going to bring her to me. (more)
by Sarah Morgan

Jonathan had just signed the papers for Noah to be placed on ECMO, a heart-lung bypass machine. Noah’s lungs just were not strong enough, and without ECMO, his chance of survival dwindled. MORE

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