Videos

CDH Case Study: Baby Metamorphosis

This video reflects the potential metamorphoses infants diagnosed with a congenital diaphragmatic hernia have available to them with the proper medical support, medical resources, professional and parental support.

This campaign coined "Why is CDH Awareness Important? - Global CDH's mission and raising congenital diaphragmatic hernia awareness are very important in today's world because..." is to further our mission to raise awareness with the people who know it best - those individuals who have been involved with CDH directly or indirectly.

Research Corner

Currently, up to 30% of babies with isolated CDH die from the consequences of lung hypoplasia and/or pulmonary hypertension. Antenatal prediction of outcome essentially relies on the measurement of lung development by the so-called lung area to head circumference ratio (LHR). By expressing observed LHR as a proportion of what is normally expected (O/E LHR) at a certain time point in gestation, a prediction of outcome can be made. When O/E LHR is less than 25% of the normal, postnatal death is very likely. In these cases, an antenatal intervention that can improve lung development is currently offered. Currently, this is done by percutaneous fetal endoscopic tracheal occlusion (FETO) with a balloon at 26-28 weeks, and reversal of occlusion at 34 weeks. The feasibility and safety of percutaneous FETO have been established and the procedure seems to improve outcome in severe CDH. The lung response to, and outcome after, FETO depend on pre-existing lung size respectively gestational age at birth. (1)

(1) L. Gucciardo. “Prediction of outcome in isolated congenital diaphragmatic hernia and its consequences for fetal therapy.” Best Practice & Research in Clinical Obstetrics & Gynaecology, 2008;22(1):123-138

Dr. Stolar Presents at Global CDH: Global CDH invites Charles J.H. Stolar, MD, Surgeon-in-Chief and Director of Pediatric Surgery at Morgan Stanley Children's Hospital and the Rudolph N. Schullinger