e-Newsletter Past Issues
President's Corner The first half of 2009 has been very interesting in terms of nonprofit sustainability. Even though the global economic downturn continues to influence how we as nonprofit’s manage our programs, marketing, and fund raising efforts...we must be accountable and transparent with all to be sustainable. (more)
Ethan’s CDH Journey by: Trisha Glahn
My beautiful son was hooked up to so many machines, oxygen, and had warming lights on him. I felt disconnected from him and was worried that I would never get to know him. (more)
My beautiful son was hooked up to so many machines, oxygen, and had warming lights on him. I felt disconnected from him and was worried that I would never get to know him. (more)
Global CDH Runners Complete Half-Marathon Raise $1,336 for CDHRunning and raising funds for a nonprofit organization have always been a perfect match. So, what is the secret? What does it take to raise funds and complete a half-marathon? Besides having a passion for running, it also takes believing in the power of raising awareness for a cause and the importance of helping others. (more)
Our forum is a great way to express yourself and communicate all of the subjects important to us - parents. Our goal is to connect parents-to-be, parents, family members, and medical professionals who have a common interest towards CDH. (more)
Choosing not to abort babies with disabilities
They range from Monica Rafie, a Chicago-area mom of five who in 2001 was told her second child, Celine, would likely die of an underdeveloped right heart ventricle, to Anna Lise "Cubby" LaHood, a Silver Spring woman who learned in the spring of 1988 that her unborn son, Francis, would only live briefly outside the womb. (more) Courtesy of The Washington Times
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Volume 1, Issue 2 November, 2008
| President's Corner: "Every child diagnosed with CDH has a very unique experience. One aspect of life that is common throughout a CDH experience is the lifestyle change parents consume to balance individual lifestyle with hospital visits." (more) |
| From High Mortality to High Survival: by Charles J.H. Stolar, M.D. "... as recently as 30 years ago, the prognosis for babies born with CDH offered little hope. So when Charles J.H. Stolar, MD, Chief, Division of Pediatric Surgery, brought the innovation known as ECMO to Morgan Stanley Children's Hospital of NewYork-Presbyterian (formerly Babies Hospital) in 1982, its benefits were quickly noted." (more) |
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by: Sandra Miniutti
Earlier this month, I was a guest lecture at Seton Hall’s Nonprofit Sector Resource Institute’s Financial Management Certificate Program. Participants in the program include executive directors, fundraisers, financial managers, board members as well as individuals considering a career change from the for-profit to the nonprofit sector.
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by Charles J.H. Stolar, M.D.
Because babies with congenital diaphragmatic hernia (CDH) have underdeveloped, or hypoplastic, lungs, they often are unable to breathe at birth. Moreover, the lack of adequate blood vessels in hypoplastic lung tissue results in inadequate blood flow, causing high blood pressure in the lungs—a dangerous condition called pulmonary hypertension
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Over 200 employees enjoyed an exquisite breakfast presentation from local bakeries Harvest Moon Fine Catering, Stein’s Bagel Shop, and DePieros Country Farm in Montvale, NJ... " (more)
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Global CDH is not only committed to supporting families and children. We are committed to building a young generation who are aware of these issues and allow individuals with similar interests become involved in our research initiative... " (more)
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by Michelle Greager
This is the story of our Angel Baby, and how his short life had such a huge impact. . I hope everyone will be able to take a little something from this article." (more)
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by Shanell Browand
On September 20, 2007, Ayda Rose Browand was born at 4:42pm, weighing 7 lb. 11 oz. I couldn't hold her. They took her over to the bed and cleaned her up as they put her on oxygen. I looked around. My hospital room was full of stress. I had my husband, mother in law, mom, grandma, two Antepartum nurses, 2 OBGYNs, 2 NICU doctors, and 4 NICU nurses. It was so stressful! (more)
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by Arly Genao
Isabela was born at 1:01 am. I was only able to catch a glimpse of her as they rushed her to the other side of the room for cleaning, etc. I was filled with so many emotions as I waited for them to bring her to me to hold for the very first time. I kept asking Luis what they were doing, and how she looked, and when they were going to bring her to me. (more)
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November 19, 2008, Global CDH invited Charles J.H. Stolar, MD, Surgeon-in-Chief and Director of Pediatric Surgery at Morgan Stanley Children's Hospital and the Rudolph N. Schullinger in New York City, to discuss pre-term diagnosis and surgical procedures of CDH. (more)
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On behalf of the Board of Directors and the Volunteer Team of Global CDH, I would like to announce an exciting event Global CDH participated in on November 14, 2008. This event was sponsored thru Human Resources and Diversity and Inclusion at Mercedes-Benz USA, LLC clubs... " (more)
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